Parenting a Sick Child is:

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Parenting a Sick Child is:

  • missing Christmas concerts for surgical consultations;
  • rarely sleeping beside my husband;
  • 3am gtube feeds;
  • 10 texts a day with nurses;
  • tracking every ml and calorie;
  • excitement over cheap medical suppliers;
  • rescheduling lunch more than twice;
  • the exception request form;
  • forgetting your best friend’s child’s┬ábirthday party;
  • 13 migraines a month;
  • no hair cut in 4 years;
  • $40,000 in medical debt;
  • neglecting your healthy child;
  • surgeons knowing her by name;
  • too much fast food;
  • laundry living in baskets;
  • employers with compassion fatigue;
  • trick or treating in ward 3B;
  • replacing novels with medial journals;
  • navigating hospitals easily;
  • editing out;
  • fighting about treatment plans;
  • notes left on the kitchen counter;
  • 2 dates a year with your partner;
  • not needing to say I love you;
  • knowing tomorrow will be harder;
  • getting out of bed to fight another day;
  • seeing a 5 year old pull through what few could;
  • gratitude for simple days at home together.
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